Oy. ok. So as Tate mentioned in the last post, last week we were at Hartford Hospital getting a second opinion. We saw a wonderful medical oncologist who read the pathology report and agreed with both the diagnosis and the course of treatment. However, were also in the process of getting other opinions. The people that Ashley works with recommended that she send all of Tate’s records to a world renowned retired specialist in this field. This unbelievably kind doctor read the 330 pages that lead up to the pathology report. He was very unsatisfied. In a conference call yesterday, he spoke to all us from Miami. Karen, Tate and I were here in Hartford, Dezi was is Chicago and Ashley was in DC. Modern technology.
He feels that there were too many unanswered questions (such as what the lump on his clavicle actually was, why it popped up so quickly and why it went away) and that the biopsy was unable to determine for sure that it was stage 3 Adnocarcenoma. He says the report uses terms like “consistent with adnocarcinoma.” He explained that cancer treatment is so dependent on the exact type and stage of the tumor, that he does not feel comfortable going with “all signs point to” types of diagnosis. He said that he did not think we wwere talking about malpractice or anything but just in his words, “the junior varsity team.” He recommended that we have the actual slides (ie the actual tissue sample) to Sloan Kettering Cancer center where they specialize in diagnosing difficult cases like these.
So what does this mean? We are not totally sure. This doctor did not offer another diagnosis. He was as stumped by all the varying symptoms as anyone else. But he says that should mean at least further testing.
This morning Tate arranged for the slides to be sent to Sloan. We hope to hear something by the end of the week. In the meantime, he is continuing with the radiation.
The doctor said, “look you want to look back on this and know that you did everything you could and used all of the resources available to you.” Tate is extremely fortunate to have exceptional resources available to him. So that is what we will do.